Beneficiaries

Because we have first-hand experience with the devastating effects of Cystic Fibrosis, the Board has agreed to donate $100 or 1% of discretionary funds from every event, whichever is greater, to the National Office of the Cystic Fibrosis Foundation in Bethesda, Maryland in Brianna’s Memory.

The remaining 99% of the discretionary funds will remain in Alaska for the benefit of Alaska’s children.

Our designated project for the Children’s Hospital at Providence, is to furnish a teen lounge for the adolescent and teen patients of Children’s Hospital.

We hope to raise a minimum of $50,000 for equipment, furnishings, and supplies (see the "Teen Lounge Wish List" page) for this room.

Due to the overwhelming success of our very first SuperShoot, we were able to open a Restricted Trust in the amount of $10,000 towards our goal. With every event we hold, we will add to the Trust. As of December, 2011, we have $34,500 set aside for the Teen Lounge!

See our “How to Help” page for information on donating to the Foundation. If you wish to designate funds specifically for the Trust for the Tower Project, please make a note on your check or contact us with your request.

Cystic Fibrosis Foundation
Website

The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind with nearly 90 percent of every dollar of revenue being available to fund cystic fibrosis research, care and education programs.

In fact, Charity Navigator, the country's largest independent evaluator of charities, has given the Cystic Fibrosis Foundation its coveted four-star rating for sound fiscal management.

The National Institutes of Health and many prominent publications, including Forbes and USAToday, have heralded our innovative business model, which fuels drug discovery and development programs.

The Cystic Fibrosis Foundation Is....Hope in Action

Until we conquer this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as:  

• Scientific pioneers, blazing new trails in CF research;
  
  
• Fund-raisers, securing the money needed to support our efforts;
  
  
• Advocates, keeping CF a top priority in government, industry and research;
  
  
• Investors, funding drug discovery and development;
  
  
• Caregivers, linking patients and families to specialized CF care; and
  
  
• Family, offering support, information and resources.

The Cystic Fibrosis Foundation Is…Building on Success

• When the Foundation was established in 1955, children with CF were not expected to live long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, the predicted median survival age for people with this disease is now more than 37 years.
  
  
• In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis—a monumental breakthrough on the road to a cure.
  
  
• The Foundation has played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting more than 30 potential new treatments currently in development—that's more than in the entire history of the disease. Our challenge is to find enough patients to join clinical trials to keep the research moving forward.

The Cystic Fibrosis Foundation Is.....Still Making Progress

We are proud of our achievements. But, we still have much to do. Learn more about what the Foundation does to fight cystic fibrosis and how you can get involved.

The Children's Hospital at Providence
Website

Located within Providence Alaska Medical Center, The Children's Hospital at Provendence functions as a hospital within a hospital.

The Children's Hospital is known for its outstanding NICU, PICU and Maternity Center. The 100-bed facility offers family-centered care in every area of pediatric medicine and onsite clinics. With the programs and services offered, their medical specialists are able to care for children with multiple medical conditions and requiring multiple levels of care. Many of these services are made possible by the generous support of our community.

Services include:

• Maternity Center
• Newborn Intensive Care Unit
• Pediatrics
• Pediatrics Intensive Care Unit
• Pediatric Sub-Specialty Clinic
• Pediatric Therapies
• Pediatric Neurodevelopment Clinic
• Nursing Boutique
• Laction Clinic
• Parenting with Providence Classes
• Family Support Services
• Alaska CARES
• All Alaska Pediatric Partnership
• Autism Diagnostic Network
• Parent Involvement and Volunteer Activities

The Children's Hospital at Providence has a unique approach to care. It's approach that caters to children and reassures families. Our family-centerd care approach provides the highest quality health service in a family-friendly environment that reduces stress and involves parents at every step of care.

Most important, it provides Alaska's children with the most comprehensive care available close to home.

Click images for PDFs of Thank Yous!